27 dec: Fever, in the hospital

Unfortunately, not very happy tidings for Lennard, just after Christmans… From bloodwork done at the hospital, Lennard is showing to be suffering from an infection of some kind… Lennard has been hospitalised at the Medical Centre Twente in Enschede (MST). Last week, Lennard completed a chemo course. That went quite well. Of course, being in […]


22 June: Things are looking up!

It has been about two weeks since Lennard got released from hospital after his fourth course of treatments. The fourth course is a tough one… but Lennard is coping very well this time. Pretty quickly, he’s able to sit up (not just lie down) on the sofa. And the C-diff which bothered Lennard during earlier […]

Kibbeling eten, njammie!

10 June: One year ago…

This week, on 10 June, it was exactly one year ago. One year ago that Lennard complained of abdominal pain. Abdominal pain that was so bad that he was screaming, and his mum Marleen took Lennard to the GP. That the GP did not like what he saw, and he sent Lennard to the hospital. […]

17 March: first immunotherapy treatment

Last week Lennard received his first immunotherapy treatment. It was a tough week. To briefly explain what happens during immunotherapy: Lennard receives antibodies. These antibodies attack cancer cells, with the help of certain proteins. The proteins recognise the cancer cells, attach themselves to the cancer cells, and destroy them. That is very good of course, however […]


19 Feb: getting ready for the USA

Things are getting exciting! Just a few more sleeps, and then Lennard will depart for the US. Lots of stuff is being done and organised, imagine simply packing up and leaving for another continent, for six months! It was not easy to find accommodation so far away. Thankfully, real estate agent Lena was incredibly helpful. […]

foto 1 (2)

6-2: eind deze maand, USA!

  Eind deze maand zal het dan echt zo ver zijn… Het groene licht uit het CHOP (Children’s Hospital of Philadelphia) is gekomen, ze verwachten Lennard eind deze maand! Dat is snel… Dus nu is het zaak om de laatste zaken te regelen rond huis, tickets, etc. De voorbereidingen waren natuurlijk al getroffen, maar nu het […]


9 Jan: Lennard is all clear!

We have just received wonderful from news from the hospital: Lennard is all clear! The results of the scans are in. The doctors can’t see any of the cancer spots anymore. Not even the little spots that showed up on previous scans; everything has disappeared. The doctors are really happy with the results they are seeing. […]

Lennard voor MRI

6 Jan: Scanday! Lennard gets better, slowly but surely

To all family, friends, loved ones, and everybody who has been so supportive to Lennard in these past few months… A very happy 2015 to you all! We hope this new year will also bring Lennard and his family much joy, next to the hard times that they undoubtedly will have to endure… We hope 2015 […]


16 Dec update: a hard fight for Lennard

A short update from the hospital concerning Lennard. The high dose chemo is having a severe impact on Lennard’s health. His immune system is hardly functioning right now. Lennard is in pain and suffering from fever. His entire body is putting up a hard fight to get better. The doctors and staff at the hospital are taking […]

Maxima en Lennard, bijeenkomst Villa Joep met logo

Lennard meets Queen Maxima at Villa Joep!

  Last Wednesday 12 November, Lennard met Queen Máxima! Villa Joep, the foundation against neuroblastoma children’s cancer, received a visit by Queen Máxima at the occasion of their 10 year anniversary.  Patients, their brothers and sisters, parents, and experts were invited to talk about what it is like for a family to be confronted with neuroblastoma, and why […]